Esther was diagnosed with Elhers Danlos and POTS on the 19th March
After many years of seeking reasons why Esther was experiencing so many symptoms we decided to go to see a Professor who is one of the world's leading experts on Elhers- Danlos /HMS . The Dr's had referred to Esther having hyper mobility but were not investigating any of Esther's other symptoms. Esther wrote a long report about her health and how she had been treated. I wrote all the family history which included a great Grandmother who could put her hands flat on the floor in her 80's. I also photocopied all letters and reports for Professor Graham to look at and took photos of Esther's hyper mobility. We drove to a train station in London, parked the car and got the tube to St. John's wood. It was very quiet because it was the middle of the afternoon. We finally arrived at the reception and were given a questionnaire for Esther to fill in. We had arrived early and so sat down to wait to see the Professor. Finally Esther's name was called out. We w...